Not surprising, given the state of the web in our lives, I’m finding more and more blogs written by teens and adults with CF. I stumbled across this one by a writer and poet who calls herself Cystic Gal. She wrote this poem during her recent hospital experiences.
Reading through Cystic Gal’s blog, I’m once again struck with the image of fighting a dragon. I’m certain there are days when the individual who happened to get the CF genes feels a bit like the knight who drew the short straw and gets sent out to face the dragon alone. On the other hand, this is a fight that takes an army–family and friends providing support and help with daily treatments, doctors, nurses and other medical providers and the researchers who are finding ever better treatments and hope of a cure.
At Unleash Your Story our role is far from the front lines, but it is crucial. The fight does take courage and the will to keep up with daily treatments on good days and bad. But it also takes dollars to fund all that research, to get the word out about each advancement and help put the right treatments where they are most needed. The Cystic Fibrosis Foundation is out there–providing those lonely knights with the crucial armor and weapons they need to fight on.
Until that dragon is slain.
Your participation–reading, writing and inviting friends to donate–really does make a difference. Register today to join the fight.