Blogging CF

August 16, 2009 at 3:33 pm 2 comments

Not surprising, given the state of the web in our lives, I’m finding more and more blogs written by teens and adults with CF. I stumbled across this one by a writer and poet who calls herself Cystic Gal. She wrote this poem during her recent hospital experiences.

Reading through Cystic Gal’s blog, I’m once again struck with the image of fighting a dragon. I’m certain there are days when the individual who happened to get the CF genes feels a bit like the knight who drew the short straw and gets sent out to face the dragon alone. On the other hand, this is a fight that takes an army–family and friends providing support and help with daily treatments, doctors, nurses and other medical providers and the researchers who are finding ever better treatments and hope of a cure.

At Unleash Your Story our role is far from the front lines, but it is crucial. The fight does take courage and the will to keep up with daily treatments on good days and bad. But it also takes dollars to fund all that research, to get the word out about each advancement and help put the right treatments where they are most needed. The Cystic Fibrosis Foundation is out there–providing those lonely knights with the crucial armor and weapons they need to fight on.

Until that dragon is slain.

Your participation–reading, writing and inviting friends to donate–really does make a difference. Register today to join the fight.


Entry filed under: How you can help. Tags: , , , .

Moving right along Q&A


  • 1. Cystic Gal, Mary ElizaBeth Peters  |  August 21, 2009 at 1:43 am

    Thanks for reading my blog and for mentioning it on your site! I plan to participate in Unleashing MY story and love the idea of this fundraiser! Though the poem you mentioned was mostly comical (I thought, anyway, by the end of it), some others have been less-so. I invite you and the fans here to read the other two,, and thanks for inspiring me to write some more!!

    Wellness to you,
    Cystic Gal, Mary ElizaBeth Peters

    • 2. Teresa Bodwell  |  August 21, 2009 at 1:58 am

      Thanks for sharing your poems and your story!

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Support for your fellow readers and writers while you help fight cystic fibrosis! It's easy to donate online. Thanks in advance for your support!

How we’re doing…

In 2008, Unleash Your Story raised $11,366 for the Cystic Fibrosis Foundation. Our 2009 goal is $23,000. Dollars Raised
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Lori Wilde is our 2009 Pacesetter Author.

Lori has sold 47 books to 4 major New York publishers--5 books coming out in 2009. She's prolific and dedicated to writing regularly to keep up with all those deadlines!

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