One mom’s story

September 3, 2008 at 6:05 am

We’ve asked some authors and readers to give us their thoughts on reading, writing, living with CF and the work of the Cystic Fibrosis Foundation. Watch for our guest bloggers through the month of September.

Here is the first from author, Clover Autrey:



When my son Chase was diagnosed with Cystic Fibrosis, our doctor told us that he once had to tell parents that their child’s life expectancy was 12 years old. That was just before researchers found the gene that causes Cystic Fibrosis. Chase will be turning 13 this month and his life expectancy is so much longer now.

In the last couple of years, with the identification of the CF gene, there have been giant strides made in gene therapy and treatments. As a mom, my job is to keep Chase’s lungs and liver as healthy as possible so that when a treatment or cure is finally found to get rid of, bypass, or redesign that defective gene, Chase will be able to benefit from it. I believe that it can happen in his lifetime.

We’ve had our traumatic moments when his lungs were so labored I could see his breath straining against his ribs, he’s had several surgeries, his spleen removed, and I think he’s spent a total of five different Christmas holidays in the hospital, but I’m so grateful every day that the Cystic Fibrosis Foundation’s Researchers provide me with new treatments, some as simple as getting Chase to breathe in salt water, or better equipment to get the mucous stuck in his lungs moving.

Anyone who has ever given a dime or a penny to the CF Foundation probably won’t ever see how much it impacts lives on a daily basis. Right now. You all have my heartfelt gratitude.


Entry filed under: cystic fibrosis foundation, Information, Living with CF. Tags: , , , .

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In 2008, Unleash Your Story raised $11,366 for the Cystic Fibrosis Foundation. Our 2009 goal is $23,000. Dollars Raised
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Pacesetter Author

Lori Wilde is our 2009 Pacesetter Author.

Lori has sold 47 books to 4 major New York publishers--5 books coming out in 2009. She's prolific and dedicated to writing regularly to keep up with all those deadlines!

Lori promises to set a sizzling pace for all our writers to follow! Her goal for the event is 60,000 words!

To learn more about Lori, visit her Pacesetter Page

Michelle Buonfiglio Pacesetter Reader

We are proud to have Michelle Buonfiglio as our 2009 Pacesetter Reader.

Michelle hosts Barnes &’s new “Heart to Heart” (H2H) daily romance fiction blog and is the creative force behind (RBTB), a fun and positive place where readers and writers hang to talk love, sex, family, life -- and, of course, romance novels

Michelle's goals are to read 10,000 pages and write 10,000 words in her blogs and comments.

To learn more about Michelle, visit her Pacesetter Page


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